My son, Jack, is a sweet, mischievous,
charming, four-year-old who is never far from trouble. He also has moderate to severe hypotonia and global developmental delays.
It has been a long and, at times, difficult
journey together for our family, trying to figure out the cause of his hypotonia, implications for the future, and the effect
his challenges will have on his life. Because of this, I'd like to share Jack's story in brief as well as make contact
information available on the off-chance this might help someone else.
The past 3 years since we first heard the word "hypotonia"
(and had no idea what it meant) have been terrifying, stressful, amazing, and life-affirming all at once. While I will
mostly share the particulars of Jack's medical and developmental history here, I want to mention that the emotional journey
has been even larger. Some day, when I've sorted it out, maybe I'll add that as well.
Thanks for taking a look!
Sincerely, Mya-Lisa
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